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Congenital Heart Surgeons' Society Data Center
Clinical Studies: Current Study Protocol

Patient enrollment criteria for our 12 CHSS research cohorts are listed within this section.

For detailed documentation including IRB templates, amendments as well as Data Use Agreement templates please see here.

Please note we are moving towards a Registry model. If you are interested in participating in a study, please contact the CHSS Data Center directly at: chss.dc@sickkids.ca so we may discuss the study onboarding process with you.

These numbers are up to May 01, 2021.

Diagnostic Cohort Institutions Accrual Enrolled
Complete Transposition 24 1985-89 891
PA/IVS 33 1987-97 448
Interrupted Aortic Arch 33 1987-97 470
Coarctation of Aorta 36 1990-93 975
Aortic Valve Atresia 26 1994-2000 566
Critical Aortic Stenosis 28 1994-2000 421
Tricuspid Atresia 42 1999-present 422
Pulmonary conduit 29 2002-2014 632
Critical Left Heart Obstruction 29 2005-2019 1241
Anomalous Aortic Origin of Coronary Artery 55 2009-present 985
Atrioventricular Septal Defect 32 2012-present 739
Ebstein Anomaly 1 2019-present 12
Total 78 1985-present 7802