CHSS Main Site | Data Center For Families & Patients | Contact Us
Congenital Heart Surgeons' Society Center for Research and Quality
Clinical Studies: Current Study Protocol

Patient enrollment criteria for our 12 CHSS research cohorts are listed within this section.

For detailed documentation including IRB templates, amendments as well as Data Use Agreement templates please see here.

Please note we are moving towards a Registry model. If you are interested in participating in a study, please contact the CHSS Data Center directly at: so we may discuss the study onboarding process with you.

View current enrollment numbers

Diagnostic Cohort Institutions Accrual
Complete Transposition 24 1985-89
PA/IVS 33 1987-97
Interrupted Aortic Arch 33 1987-97
Coarctation of Aorta 36 1990-93
Aortic Valve Atresia 26 1994-2000
Critical Aortic Stenosis 28 1994-2000
Tricuspid Atresia 42 1999-present
Pulmonary conduit 29 2002-2014
Critical Left Heart Obstruction 29 2005-2019
Anomalous Aortic Origin of Coronary Artery 55 2009-present
Atrioventricular Septal Defect 32 2012-present
Ebstein Anomaly 1 2019-present
Total 78 1985-present